my illness by kaitlin

[Dark]

Hello all ok some of you have asked what's my illness and what's it doing to me.


So ill share my illness with you all.

It all started when I was in childcare I have lukimaiya I was around five years old.
I was abused as a baby and have learning problems and speach problems. I have a problem with my brain it sends wrong signals. This making me really sick. What's it doing to me well first of all it can make me really sleepy hear sounds what are not there shut my body down when I'm out side this making it dangerous for my every day life. Eg can't go out by myself can't bath by my self and so forth as it can happen at any time even when typing. My cancer has no cure but it can be prolonged this slowing it down I have had this since age of five I'm now twelve. Last year I had a operation on my heart as it was slow this nearly killed me I was in hospital 20 weeks. Having treatments eg for my cancer heart extra as my body could not keep up with what I wanted to do eg school playing going out was a big no no as I would just sleep. I now take tablets to stop me from falling to sleep but there not 100% as I still do it from time to time. Each week I have my blood cleaned at hospital this takes about four to five hours plus depending on my blood count level as some times its low.

On average I can be in hospital 3 to for days per week depending again how I feel and what my blood level count is. I have a finger prick test each day what counts my blood level its got three lights green good blue low red dangerously low.

Sounds why do I hear sounds what are not there well this is mainly due to my brain sending wrong codes to my body extra this blocking out normal sounds. What is this doing well its making me wet myself as can't control my bladder extra. Ok ill leave it there as I could go on for weeks.

[Shawnnepc]

I'm very sorry to hear that.

I hope that everything works out for you 🙂

[Dark]

It's ok had it all my life i dont find it a problem its just there and i deal with it af to all i can do part from being strong as im bringing up my baby sister she is all i need 🙂

[xeromist]

It's unfortunate that you find yourself in such trying circumstances but it's very cool that you are making the best of it. 🙂 Thank you for sharing with us even though you certainly did not have to.

[Dark]

xeromist wrote:
It's unfortunate that you find yourself in such trying circumstances but it's very cool that you are making the best of it. 🙂 Thank you for sharing with us even though you certainly did not have to.

Your welcome and I wanted to share as if I'm not on forum will be mainly due to me being poorly.
I have my bad days and good but sometimes I have moments when ill just sleep all day for hours on end its rare but can happen once I slept for 30 days woke up in hospital but that's not happened for a wile. Normally ill just.fall to sleep and wake up 30 min 10 20 and so on and that's mainly due to my brain.being none active thats when I.feel sleepy most. But I'm normally talking or pming or posting so its a so so if I do or don't fall to sleep I'm sure users don't mind if I post later its only a illness.

[Arniebomba]

One can only say MAKE THE BEST OF IT!!.... I still dont know why we can travel up and back to the moon, but we're not able to cure these kind of illnesses.

[ganji]

sorry to hear about ur illness n thanks for sharing.
ive been ill with crohns disease for 27 years n that can be a pain in the arse but what u have to deal with is massive in comparison. thanks for sharing. u seem to cope well and have a positive head on ya shoulders.
i have a couple of friends who have cancer too n its not very nice. infact one of them has just left hospital after a liver transplant.

all i can say is keep ya chin up n take care 😉

[Dark]

crohns disease is that ware you can't eat gluten foods my baby sister can't eat gluten products and her tummy gets very upset and she has buscopan for it.

I just live day by day my ups and downs but I deal with it its not a problem most times.

[ganji]

Dark wrote:
crohns disease is that ware you can't eat gluten foods my baby sister can't eat gluten products and her tummy gets very upset and she has buscopan for it.

I just live day by day my ups and downs but I deal with it its not a problem most times.

some people with crohns cant eat gluten products but thats not down to the crohns itself i dont think as i dont have any probs with gluten. crohns just affects the digestive system it stops u absorbing anythin from food n basically just eats away at the digestive system.
the inside of ur intestine is all rough so food passing by can stick to it n nutrients get absorbed from the food but with crohns it makes all the insides smooth so nothin can stick n be absorbed. i had to have my large intestine removed when i was just a couple of years older than u(15) n had to wear a eleostomy bag on my side since.
it hasnt been too bad for a few years but the last couple of years its flared up again. knocked me on my ass a bit but no biggy. just gotta get on with it enit 😄
as i said b4 its nothin compared to what u have to deal with but i can sorta understand how u feel.
just keep on doing what ur doing. ur obviously a strong girl n have a decent head on ya shoulders 😉

[DaemonCantor]

See Dark you were worried what people would say, Now you know not all people are JERKS!.. and on this forum we have a LOT of GOOD and KIND People that do understand. You as well as a lot of people here know what my malfunction is but like Ganji stated your is worse than mine even though I think of mine all of the time...lol All you can do is just like all of the others here Live with it till you Beat IT! We are all better for meeting you and learning of your Courage.